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Table 2 Participant experiences and visit attendance

From: Maternal participant experience in a South African birth cohort study enrolling healthy pregnant women and their infants

Participant experiences across site   
  Median score (IQR) across site P-value
 Variable Mbekweni TC Newman Total sample
  Experiences with study information (maximum: 6) 5 (4–6) 6 (5–6) 6 (4–6) <0.001
  Experiences with study staff (maximum: 6) 6 (5–6) 6 (5–6) 6 (5–6) 0.633
  Experiences with study procedures (maximum: 8) 2 (0–4) 7 (3–8) 3 (1–7) <0.001
  Experience vs expectations (maximum: 2) 1 (1–2) 1 (1–2) 1 (1–2) 0.615
  Overall experiences (maximum: 7) 7 (6–7) 7 (6–7) 7 (6–7) <0.005
  Total participant experience score (maximum: 60) 47 (42–51) 55 (50–58) 51 (46–56) <0.001
Participant experiences across cohort   
  Median score (IQR) across cohort  
 Variable Main cohort Intensive cohort Total sample P-value
  Experiences with study information (maximum: 6) 6 (5–6) 6 (4–6) 6 (4–6) 0.001
  Experiences with study staff (maximum: 6) 6 (5–6) 6 (5–6) 6 (5–6) 0.473
  Experiences with study procedures (maximum: 8) 7 (2–8) 3 (1–6) 3 (1–7) <0.001
  Experience vs expectations (maximum: 2) 1 (1–2) 1 (1–2) 1 (1–2) 0.778
  Overall experiences (maximum: 7) 7 (6–7) 7 (6–7) 7 (6–7) 0.026
  Total participant experience score (maximum: 60) 54 (49–57) 50 (44–54) 51 (46–56) <0.001
Association between participant experience score and number of study visits attended
 Variable Participant experience score
Correlation coefficient (r) P-value
  Attendance of scheduled visits 0.20 <0.001