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Table 2 Participant experiences and visit attendance

From: Maternal participant experience in a South African birth cohort study enrolling healthy pregnant women and their infants

Participant experiences across site

  
 

Median score (IQR) across site

P-value

 Variable

Mbekweni

TC Newman

Total sample

  Experiences with study information (maximum: 6)

5 (4–6)

6 (5–6)

6 (4–6)

<0.001

  Experiences with study staff (maximum: 6)

6 (5–6)

6 (5–6)

6 (5–6)

0.633

  Experiences with study procedures (maximum: 8)

2 (0–4)

7 (3–8)

3 (1–7)

<0.001

  Experience vs expectations (maximum: 2)

1 (1–2)

1 (1–2)

1 (1–2)

0.615

  Overall experiences (maximum: 7)

7 (6–7)

7 (6–7)

7 (6–7)

<0.005

  Total participant experience score (maximum: 60)

47 (42–51)

55 (50–58)

51 (46–56)

<0.001

Participant experiences across cohort

  
 

Median score (IQR) across cohort

 

 Variable

Main cohort

Intensive cohort

Total sample

P-value

  Experiences with study information (maximum: 6)

6 (5–6)

6 (4–6)

6 (4–6)

0.001

  Experiences with study staff (maximum: 6)

6 (5–6)

6 (5–6)

6 (5–6)

0.473

  Experiences with study procedures (maximum: 8)

7 (2–8)

3 (1–6)

3 (1–7)

<0.001

  Experience vs expectations (maximum: 2)

1 (1–2)

1 (1–2)

1 (1–2)

0.778

  Overall experiences (maximum: 7)

7 (6–7)

7 (6–7)

7 (6–7)

0.026

  Total participant experience score (maximum: 60)

54 (49–57)

50 (44–54)

51 (46–56)

<0.001

Association between participant experience score and number of study visits attended

 Variable

Participant experience score

Correlation coefficient (r)

P-value

  Attendance of scheduled visits

0.20

<0.001