Themes and examples | Categories and Example |
---|---|
Theme 1: Self | Category 1: Innate Ring |
Emotion | Perception of life and death |
1. Internal conflict | 1. Confrontation with own mortality |
2. Management of own expectations | 2. Conception of a good death impacting end-of-life care |
3. Confrontation with own mortality | 3. One has a right to die |
4. Apprehension/Distress | Category 2: Individual Ring |
5. Fear due to unintentional transference to own family members | Ability to make sense of things |
6. Satisfaction in providing end-of-life care | 1. Impact ability to make decisions |
Thoughts | Abilities to communicate |
1. Doubt | 1. Loss of ability to communicate and relate to patients |
2. Perception of emotional involvement | 2. Improvement in communication skills |
3. Professional responsibility | Abilities to express feelings |
4. Death of a patient perceived to be a personal failure | 1. Emotional detachment |
5. Death of a patient not perceived to be a personal failure | 2. Emotion connection |
6. Intervention as prolonging suffering for patients | Acquired ability |
7. Intervention as prolonging suffering for patient’s family | 1. Lack of knowledge about end-of-life |
8. Withdrawal of treatment as life-shortening | 2. Inadequate opportunities for end-of-life care training |
9. Decision between active treatment or palliative intention | 3. Doubt and lack of confidence in clinical skills |
10. Perception that nurses do not grasp the complexity of end-of-life decision making | 4. Testing of practical skills such as treatment withdrawal techniques |
11. Motivated to improve communication skills | 5. Acquisition of new skills with experience |
12. Perception of intensive care unit as not conducive for palliative care discussions | Beliefs |
Behavior | Personal Beliefs |
1. Impaired ability to make decisions | 1. Dilemmas about the balancing of opposing values |
2. Impaired ability to communicate | 2. Personal beliefs reflected in end-of-life practices and communication |
3. Emotional detachment | Exposed to Ethical dilemmas such as: |
4. Difficulty and discomfort when broaching topic of death to patients | 1. Differences in ethical opinion surrounding treatment withholding and withdrawal |
5. Attempts to avoid discussion of death in general | 2. Futile treatment |
6. Fear of litigation leading to defensive practice | 3. Lack of advanced directives and families’ aggressive care requests causing moral distress |
7. Adherence to decisions despite potential legal kickback | Religious views |
8. Personal, patient, institutional and societal factors affecting decision making | 1. Influenced end-of-life discussion and decision making |
9. Poor translation of spiritual ideas to goals of care | 2. Did not influence end-of-life practices |
Theme 2: Relationships | Perceived role as a doctor |
Physician’s family | 1. Perceived duty to prolong life causing moral distress |
1. Fear due to unintentional transference to own family members | 2. Uncertainty about role in end-of-life discussions resulting in no/late end-of-life discussion |
Theme 3: Interactions | 3. Paternalistic approach to decisionmaking |
Patients | 4. Satisfaction upon reconciling dual role of saving lives and managing death well |
1. Challenges during end-of-life communication | Category 3: Relational Ring |
2. Managing expectations of patients | Family |
3. Inspiring interactions with patients | 1. Fear due to unintentional transference to own family members |
Patient’s Family | Category 4: Societal Ring |
1. Experiencing conflict with patient’s family | Physical environment |
2. Effects of conflict on the relationship | 1. Availability of resources in different countries influencing end-of-life care |
3. Family’s concern for patient’s possible pain and distress | Cultural environment |
4. Managing expectations of patient’s family | 1. Physician’s end-of-life care attitudes, behaviors and decisions privy to cultural norms |
5. Family’s distress after end-of-life care discussion | 2. Death and dying perceived as a “taboo” topic in certain cultures |
6. Empowering interactions with patient’s family | 3. Need for end-of-life care to be sensitive to different cultures encountered |
7. Factors affecting communication | 4. Workplace culture impacting attitudes and practices |
8. Creation of soft landing when informing patient’s family about death | Societal expectations |
9. Perception of intensive care unit as not conducive for palliative care discussions | 1. Societal expectations promoting survival and death prevention leading to negative perception of treatment withdrawal as the taking of a patient’s life, affecting physician’s end-of-life decision making |
Nurses & ICU Team | Legal standards |
1. Conflict between physician and intensive care unit nurses | 1. Fear of litigation leading to defensive practice |
2. Perception that nurses do not grasp the complexity of end-of-life decision making | 2. Adherence to decisions despite potential legal kickback |
3. Receiving support from other intensive care unit physicians in managing end-of-life decisions | 3. Unclear laws surrounding end-of-life practices breeding legal uncertainty |
Physicians from other specialties | Professional Relationships |
1. Challenges with interactions | 1. Conflict relating to end-of-life decisions with patient’s family and other healthcare professionals |
2. Lack of understanding of one another’s role | 2. Positive professional relationships |
Theme 4: Conflicts in providing end-of-life care | Professional standards |
Societal Culture | 1. Professional expectation that doctors should not cause death or harm to patients |
1. Societal culture impacting decision making | 2. Responsibility of treatment withdrawal decision going against physician’s perceived professional standards |
2. Stigma associated with death or talking about death | |
Workplace Culture | |
1. Shapes the way doctors view death | |
ICU Environment | |
1. Suitability for palliative care teaching | |
2. Intensive care unit as an inappropriate place to die | |
Legal environment | |
1. Uncertainty with regards to legal implication of end-of-life practice | |
Theme 5: Coping strategies | |
Personal strategies | |
1. Effective communication to strengthen decision making position | |
2. Gaining confidence through experience and with end-of-life discussions | |
3. Taking breaks from the intensive care unit or practicing on other sites | |
Strategies with patients | |
1. Collaboration with patients to reduce moral burden of decision making | |
Strategies with patient’s family | |
1. Creation of soft landing when informing patient’s family about death | |
2. Collaboration with patient’s family to reduce moral burden of decision making | |
Strategies with colleagues | |
1. Conflict management interventions | |
2. Emotional and experiential sharing of caring for dying patients | |
3. Collaboration with interdisciplinary team members |